Rare Diseases

 Syllabus: Health and Diseases  Source: IE  Context: The Delhi High Court last week issued directions aimed at improving the availability of so-called “orphan drugs”, which are medications used to treat “rare diseases” — defined by the World Health Organization (WHO) as a debilitating, lifelong condition that affects 1 or fewer people in 1,000. Definition of …

Generic Drugs for Rare Disease Cure

  Source: Th  Context: The Union Health Ministry in India has introduced generic drugs to treat four rare diseases, namely Tyrosinemia-Type 1, Gaucher’s Disease, Wilson’s Disease, and Dravet-Lennox Gastaut Syndrome.   What are Generic drugs? Generic drugs are medications that are equivalent to brand-name drugs in terms of active ingredients, dosage, safety, strength, quality, and …

Policy on rare diseases

Facts for Prelims (FFP) Source: ET Context: The Delhi HC constituted a five-member ‘National Rare Diseases Committee’ to implement the National Rare Disease Policy-2021 efficiently and to “ensure that the benefits of the policy reach the ultimate patients of rare disease”.    Rare Diseases A rare disease, also referred to as an orphan disease, is …

Rare Disease

Facts for Prelims (FFP) Source: IE Context: The Indian government has exempted all imported medicines and foods for personal use related to the management of 51 rare diseases (as listed in NPRD 2021) from basic customs duty. The government has also fully exempted Pembrolizumab (Keytruda) used in the treatment of various types of cancer