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2) How common is hemophilia in India? It is often observed Majority of hemophilia cases go undiagnosed in the country. Discuss reasons and suggest way forward to tackle the issue.(250 words)

Topic:  Issues relating to development and management of Social Sector/Services relating to Health.

2) How common is hemophilia in India? It is often observed Majority of hemophilia cases go undiagnosed in the country. Discuss reasons and suggest way forward to tackle the issue.(250 words)

Reference

Why this question:

World Haemophilia Day, celebrated on April 17 every year, aims to increase awareness about haemophilia and other inherited bleeding disorders. The day also marks the birth anniversary of Frank Schnabel, founder of World Federation of Haemophilia (WHF). The theme for this year’s WHD is ‘Reaching out – connect to your community’, encouraging to meet and connect with others with similar experiences and know what it is like.

Key demand of the question:

The answer must explain the occurrence of Haemophilia in India, why most cases remain undiagnosed and what needs to be done.

Directive word:

DiscussThis is an all-encompassing directive – you have to debate on paper by going through the details of the issues concerned by examining each one of them. You have to give reasons for both for and against arguments.

Structure of the answer:

Introduction:

Introduce with context of the question – world Haemophilia day.

Body:

  • Explain why majority of haemophilia cases go undiagnosed in India , provide for facts to justify –  reports suggest ;around 16,000 haemophiliacs registered in India but actual number could be seven times more.
  • Of all the haemophilia cases in India, just around 15% are identified while the remaining go undiagnosed. While there are about 16,000 haemophilia patients registered in the country, reports indicate that the number could be as much as seven times more.
  • Discuss the types of Haemophilia in India; reasons causing it.
  • What needs to be done – policy level? Individual level and societal level.

Conclusion:

Conclude with importance of tackling such health issues with a dedicated policy approach.